Vicious Cycle: Making PMDD Visible is a world-wide patient-led PMDD awareness collective. We aim to raise awareness of Premenstrual Dysphoric Disorder (PMDD), in both the general public and amongst health care professionals. We work to improve standards of care and patient outcomes for people living with PMDD.

 

OBJECTIVES

  • Increase awareness of PMDD in mainstream society.

  • Improve the standards of care for PMDD patients by increasing awareness of the condition within the healthcare sector.

  • Improve patient outcomes by directing health care professionals to  evidence-based resources, including treatment options and patient needs .

  • Find  undiagnosed and misdiagnosed sufferers via outreach and signpost them to relevant support and resources.

  • Ensure accurate and appropriate information about PMDD is portrayed in the media. 

  • Empower people with PMDD to advocate for themselves with evidence-based information.

  • Make information, resources and support for PMDD readily available  by signposting to IAPMD.

  • Raise awareness of the wider issues surrounding PMDD including misdiagnosis, social costs, need for research and better treatment options.

  • Provide a platform to enable others to get involved in the PMDD Awareness movement for greater impact.

STRATEGIES
 

  • Signpost PMDD sufferers to appropriate information, resources, and support, including the International Association for Premenstrual Disorders and the MevPMDD tracking app, 'See Her Thrive' and other PMDD support services.

  • Involve people living with PMDD, in advocacy activities, through the Vicious Cycle PMDD Awareness Army Facebook group.

  • Engage media outlets and relevant audiences in conversations about PMDD including written and online publications, radio, television, blogs, oral and audio-visual presentations, advertising and other relevant projects.

  • Design, produce and distribute materials to provide information about PMDD and the support services available.

  • Design and build a Vicious Cycle: Making PMDD Visible PMDD website to act as a hub for the sharing of information and resources on PMDD awareness.

  • Persuade women's health, general health, mental health organisations, and menstrual health educators to include information, resources, and support for PMDD, to their audiences.

  • Lobby for national treatment guidelines where there are none. 

  • Persuade the peak gynecological, general practitioner and psychiatry bodies to review, evaluate, and or implement training for professionals in the diagnosis and treatment of PMDD.

Can you help with any of these aims and objectives? We are always looking for more hands on deck and also ‘many hands make light work’ - if you want to help with any of the above, drop us a line: hello@viciouscyclepmdd.com